Thursday, October 29, 2015

Death and Faith

Guys, this is a first draft. I'm aware it is unclear and poorly written. But I'm not editing it. Deal. I am. xoxo

 

 

 

As a nurse, my goal is to help people towards wellness.

 

But sometimes, nothing more can be done.

 

Some of my favorite nursing experiences were with people who were about to go Home to their Maker. Heaven was so near: the room was always crowded with people I could not see. A hushed anticipation hung in the air as messengers awaited the person's journey home.

 

As a nurse, I could not cure; I could only comfort. A lot of pressure was taken off. The families loved me for being present when they needed me. They loved me for leaving them alone. And they loved me for treating their family member with dignity.

 

One lovely elderly woman was brought in by ambulance and came into my care. Her only local son was the only family in the room. I checked with he and his mother often; and finally, it seemed her time to depart was drawing near. The son poked his head into the hallway and asked to speak with me at about three in the morning.

 

He was a reserved man, nearly silent. But a little boy came out of his roughened, plaid appearance as he expressed concern. He wondered if he should leave. After talking with him, I finally deduced he did not want to be alone as his mother passed away. After he asked me, I told him I would be honored to sit with him. After handing my other patients' care to the charge nurse, this son and I sat together to be with the woman who gave him life in her last moments.

 

All he wanted to do was sit—not touch, prop, or anything else. He was a little boy—scared of death. But I knew death comes, and that his mother was so unconscious and slow that she would pass peacefully. He was afraid of an episode; I made sure he knew he was safe as he stayed with his mother in her final moments.

 

I did not point it out, but the woman's face began to flicker, light-dark, light-dark, at irregular intervals. Her face was the only skin we could see, and it reminded me of the glowworm baby dolls with glowing faces that were popular when I was a girl. The woman's breaths grew more and more shallow, less and less regular, and the light would go out for longer and longer stretches of time. I thought she was gone a couple of times, but then the light would glow for just a moment. Meanwhile, her son and I sat, and I let him talk when he wanted to.

 

Her light finally went out. The room released a breath, and energy was vacuumed like a conduit through the ceiling. "Is she gone?" her son asked. I went to her, removed just enough warm blankets to feel for no pulse, listened through my stethoscope for breath and heart sounds, and told him she had passed away. He let out a breath. He thanked me for helping them both. And he went home to go to bed once he said his goodbyes.

 

The rest of the work began before the oncoming nurses arrived—calling the doctor, bathing, charting, calling donor services and the mortuary, seeing she was transported safely, and caring for my other patients. She was gone before the next shift arrived.

 

 

 

 

As a nurse, I guess life and death have been my business. I've spent a lot of myself saving the lives of others—truly. Heavenly Father has allowed me to save or have a hand in saving many. And He has allowed me to be part of others' passing.

 

Death was always a subject I avoided until a couple years ago. I was a young wife and mother—I needed to live. Then I had to find sense in people passing away after I and a team of others had done our utmost. Then I grew sick to the point I thought I was dying, and I didn't want to. Then I went under the knife a few times. Then I was told by countless that I was fine and to have a nice life, even though I would bid love and farewell to my husband in case I didn't wake in the morning—I felt so close to dying. Then I examined death, read books on near-death experiences, made friends with death, felt no intimidation by death. Then sometimes—often—more days than not—I yearned for death.

 

Or unconsciousness.

 

Or not being aware, or existing, or feeling.

 

Just going home. And though being without a body is a burden, and I looked forward to mortality for—like—ever, and it's groovy to feel stuff and whatever, I want a break sometimes. A big, fat, unconscious break.

 

Weird that one year you're fighting for everyone else's life, and the next you're wishing you didn't have one.

 

 

 

 

Today I attended the most beautiful funeral for my husband's sweet uncle, and cancer-dominator for over thirteen years. The talks made me laugh and cry. I felt so much love. I wanted to be a better person.

 

Then the last few talks hit straight in my heart. In my usual fashion, I cried silently. The impressions that kept hitting me so hard were thoughts on how Jesus Christ succors us, how God allows us to be challenged but supports us, how our test is to endure to the end. All the while, I felt the heaviness of my burdens, the grace that I experience on a day-to-day basis, and the overwhelming emotional fatigue of feeling like I will never succeed well enough even though I am doing the best I possibly can.

 

And I cried. I cried because I was envious.

 

Just this morning, as I do often lately, I prayed that if I couldn't have a break from being conscious (hating life one minute, falling asleep, and being awakened to the same life just one second later with no relief between), could I please have an out-of-body or near-death experience so I could achieve some perspective and sit on my Heavenly Parent's laps for just a little while. Oh, how I miss Them. I have always had such a HUGE eternal perspective because of this and that (too sacred for the internets). Death is an awakening, another birth, a reunion. And gosh, I miss my Parents and my Home so much. And mortal life is so much harder than I thought it would be.

 

So yes, I'm weak. And I cried. And you can judge me.

 

I hated myself for crying. For being selfish. For envying so hard every person I hear about who has gotten to go Home. Because I've been fighting, and I'm tired, and I wimp out.

 

Bah. I'm dumb.

 

There was plenty of reason to be crying for missing our uncle who had left an astounding legacy of love. There were family members an arm's-length away who will ache for him in every thought. And here I was, pitying myself and being ungrateful for a life rich with difficulties.

 

Yes, I envied him. I wanted to be where he was, to remember what he now knows, to rush to my Heavenly Parents and feel wholeness and safety. I wanted to shed my burdensome body long enough to get some kind of spiritual recharge.

 

I heard an analogy about death once. It's like the testing center at BYU. You go in, you take your test, and you leave. Sometimes I would walk in with a study buddy, and we'd sit in faraway areas of the room. Always, she—no matter who "she" was—would finish first. She'd know her score before I even went back to the questions I'd skipped.

 

Life is like that: you go in, and some people finish early, and you see them zip to the exit without looking back. I can't speak for everyone, but it feels unfair to me—makes me do a quick check of what I can do to speed this thing along and get through my problems so I can get out of the freezing air conditioning.

 

Dumbledore said something about not pitying the dead; instead, pity the living. And I do.

 

 

 

 

So anyway, my mascara ran a little, and I recalled a part of my patriarchal blessing, which I read carefully just this morning. In it, faith is emphasized. Hard.

 

Duh! Faith!

 

A near-death experience would be too easy. Being numb or unconscious would not test me at all. I am meant to be alert, aware, feeling, thinking, struggling. I don't get to hand in my test early. I get to watch the testing center empty out while I work on problems I sometimes hate in a subject that is dang, dang hard.

 

Leaving life like I've been asking to would be too easy.

 

A spiritual reminder would be walking by sight instead of by faith.

 

I can grunge ahead seven days, but no more. Just until sacrament meeting. And sometimes I wish myself invisible until the block ends, but alas, I survive, bottom in my chair. And then it's seven whole days of enduring again. Wishing. Coveting. Regretting. Repenting. And trying to be grateful instead of angry or sad.

 

It is hard for me to have forgotten home so much. Until I'm in my Parents' laps again, I will never feel whole. There will always be a void. I will always want. Nothing will be quite right.

 

If I could have chosen, perhaps I would have turned in a subpar, incomplete test awhile ago just to get the agony over with. My brain, riddled with Lyme and other coinfections, likes to suggest this as the only alternative.

 

But Heavenly Father knows perfectionistic, gritty ol' me. And He knows I will be happier if I stick it out, even if it hurts so bad, even if my test is messy and smudged and has mysterious junk sticking to it from the vending machines downstairs. He knows I can complete it. He knows I'm stubborn enough not to leave bubbles open, even if I have to take a wild guess sometimes. He knows I'll sweat and stress and get the thing done. My essays will barely be legible, but the best I can do.

 

I'll look like I've been through a war when I hand it in. But hopefully, when Heavenly Father grades my test, and Jesus remediates it…it will be enough.

 

 

 

 

Monday, October 19, 2015

Bookworm

I made a New Years resolution this year to finish twelve books. 

Why twelve? Why, there are twelve months in the year, of course. But even at that, it felt ambitious. 

This time last year, I had a PICC line in my arm and was so sick that all I could do was watch movies and crochet. I couldn't concentrate to read to save my life, but I thought it would be a more productive use of my time if I ever shook off some of the Lyme brain. 

When I got my PICC line out last Christmas Eve, I don't know...I felt like becoming someone new. Lyme brain had lifted a little, and I'd crocheted three afghans, hats, scarves, pot holders, and anything else easy you can think of. I set this goal of reading hoping I could learn and grow this year...and just to see if I would ever be a reader again. Teenage me loved to read, but then college me and new mom me and nurse me and sick me all happened...so was there time for a reader me?

The start of my year was slow. But, to date, I have completed thirty one novels/books. I can't believe it! 

Once I passed ten or so, I couldn't stop. Now I read in spare moments, browse my library's catalog app, read reviews on Amazon, search the discombobulated shelves of the thrift store... But it feels so edifying and purposeful. I feel like I'm on the upswing of a parabola, projecting exponentially forward in my interest for this old, new endeavor. 

Purpose comes not just from reaching my goal, but also providing an escape, building my vocabulary, giving exposure to (mostly modern) literature, and practicing critical/analytical thinking again. I run through mental explications in my head. I fall in love with writing styles and characters and descriptive language. Oh, BOOKS!!!!!

I don't read a lot when my kids are awake at home, so when they are in bed and the stillness of evening is upon us (my husband often works late), I absorb new friends in the form of book characters. 

Some characters I have come to know and love this year are Cassandra (and Topaz) Mortmain from I Capture the Castle, Gwen Shephard from the Ruby Red series, America Singer from The Selection series, Keturah from Keturah and Lord Death, and Heck from Heck Superhero. Love you guys. 

I've learned what styles I like: for example, right now I do not have the concentration to finish a book that has no plot. It's too bad, because I have a lot of great plot-less books I'd like to read! I also can tolerate love triangles sparingly...but one after another. For example, I loved reading the Ruby Red series after the Matched series because I took a 1000-page break from love triangles. It was grand. I've read about more since, believe you me!

I've learned more about writing, a pastime I have sincerely loved ever since I started writing personal musings in a private notebook in fourth grade. In my reading this year, some of my styles I use were validated by other authors. For example, it seems I am not the only one who loves poetry, even free verse! Some authors write entire novels with it. It may be my jam. 

I've also learned that I don't know what my voice, schtick, platform, passion, whatever you want to call it, is, and I have a lot of drafting to do before I put out anything good. I don't feel like writing a memoir of my Lyme journey because I'm still in the thick of it, and I'm not far-removed enough yet to write my feelings without being deeply affected presently. I don't have a fictional story to tell yet (well, I do...but I have to do tons of research and maybe get another degree first). My poetry...well, my husband likes it, but I don't have a subject worth putting out there yet. I won't write a cookbook, ew. (Maybe a booklet?) I'm a fair lyrics writer, but effortless tunes only come to me once in a blue moon. 

However, I do excel in journaling--the stuff no one will read in real time. 

I don't know where my journals will end up in the end. I label my papers by age, so maybe a descendent of ours will want to see what, say, nineteen-year-old me was like or something...but it may be rubbish! Meh.

But back to books. I love them. I love flipping pages, smelling the print of a brand new book, tasting the food they describe, hearing sounds created my mere verbiage. It's amazing what words can do! And it's amazing what an addict I've become to words. 

I love reading about social issues right now, this month. That's my jam. Oh, Heck Superhero was so good in that way. The author didn't leave out real issues, like trying to find a restroom to use in the morning when you're homeless. Or hunger that is all-consuming and just can't be ignored. Those are real issues!!! People don't talk about hunger or needing to urinate in their books, you know? It's just assumed that meals and hygiene happen in between the other adventures. Well, to me, physiology matters, and j thank Martine Leavitt for bringing it home. Not knowing what to eat is a daily dilemma for me, and I'm too weak to make stuff very often. It's a first world problem maybe, but it's legit for me. Not having the energy to shower, and feeling gross and unkempt, really happens about every other day for me. Food and hygiene matter. Why don't more characters talk about this? I think that's why I'm loving reading about people who just struggle with their own versions of day-to-day living. Are we not all climbing mountains? Are we not all walking each other home? (*steps off soap box*)

I love lots of books. Not gushy, Mormon romance so much right now...or super dark horror probably ever...or plotless books, as wonderful as they are. Young adult fiction rocks, compelling stories that change my view of humanity or the world is awesome, and a froofy young adult romance never hurt, but not every time. 

It's just nice to be reading! Do you love to read? What's your jam? What feeling do you want when you close a book? Personally, I want to sigh or have my mouth hanging open in amazement. Then j want to scramble back to my favorite parts again and read them over. 

Oh my...the magic of books!


Sent from my iPhone

Sunday, October 11, 2015

Art

They say it is something special. 
They say it is grand, touching, and relatable. 
But I just see this thing I made,
This thing I thought was only
Kind of
Okay. 

They say that they want more. 
They say I have a lot to give, show, and say. 
But all I see is vague repetition,
That cannot be valuable. 
And really--
What?

They say that I've got...something. 
They say I do it right, well, and poignantly. 
But all I see are half-baked drafts,
And they are probably not grand,
But share...
I do. 

I say that my work has changed. 
I say these works are no longer mine: ill and earthly.
For I see that feeble thoughts are touched
With power I did not request,
Because---
They're His. 

He says what He thinks they should.
He says what each person needs, wants, and craves. 
But He does not force the feelings down;
He invites us to look.
They are free
To keep. 

Saturday, October 10, 2015

New Body

I kept feeling like I should write this post, but I didn't want to. I didn't want to share this. Or admit to it. Or accept it. Or be it.

But I'm ready now.

I've viewed my illness as a detour from the life I'm supposed to get back to any time now. A set back. A frontage road running along my favored course. Sometime, it will merge, right?

Because when you get sick and you're barely in your twenties, you get better, right? Your prime is still ahead, right? Your body is confused or having a meltdown, but it will get back with the program because it's young, right?

Do I have to answer that question?

I finished Ann Romney's book, In This Together. It tells her story of having MS. I dog-eared the pages that touched me, where she articulated my feelings about having a debilitating chronic illness so well. The beginning third of the book impressed me the most. Here, I directly quote what she said, because after four drafts, I still can't do a fair job of summarizing. 

A friend of a friend who was a few years ahead of Ann in her own MS journey offered Ann counsel over the phone. 

"'You've basically moved into a new body,' she began. 'The things you took for granted before are no longer true anymore, and it's your job to take care of this new body. You have to listen to it and pay more attention to it than you're used to doing, and you have to understand and accept the fact that you have limitations...People are going to try to push you a little, because you don't look any differently to them...the people who love you most have to understand that you're not who you were before and can't do the same things...Learn your limitations,' she said."

A new body. Limitations. No going back. Neat. 

I mean, obviously, we get new bodies through life. Think toddler bodies vs. school-aged bodies, pre-pubescent bodies vs. post-pubescent bodies, newlywed bodies vs. elderly bodies, and all the many bodies in between, like athletic, post surgical, and menopausal.

But ill bodies, if expected at all, are not expected until the late, late years. This is why it's so shocking and tragic when illness touches someone at a younger age. It doesn't seem right.  

I certainly didn't expect illness. I went to university on a dance scholarship and had a powerful, lithe body. I had a baby as I graduated with my bachelors degree and hoped for at LEAST nine more. 

I remember the alarm and devastation of living in my recovering, post-birth body and wondering if I could never be put back together again. I cried, "I'm leaking from almost every oriface all at once! Motherhood has broken my body!"

I recovered quickly to a new normal, yet I was a bit altered. I still danced--muscle memory is a gift. But my perfect ballet abdominals were sacrificed for my baby. Every "improvement" to my post-birth body was a reminder that the heavens opened and two of the brightest souls in the universe came into the world via my little mortal frame.

But illness? Illness. 

I haven't been able to figure illness out. It's stuck to me. I can't shake it because it's my new body. 

It's going to take some time to swallow. I've always wanted to be the tough girl who helps put up chairs after church, the dainty girl who clears the plates after dinner, the tough mother who lifts a turkey in and out of the oven with sinewy arms glistening from the heat of the kitchen. I've wanted to kick box and shoot hoops and run half marathons. I've wanted to rearrange furniture and clean the house by myself, run kids to school and activities, handle the finances and be my husband's business sidekick, be the mom who swims with her kids and takes them to a new park every week. And I wanted to have a baby attached to me in some way at all times. 

But thank goodness that Heavenly Father has changed my heart and made me content without all that. 

My doctor says I should focus on what I CAN do and not on what I CAN'T do. I heard that again about three times during General Conference last week. 

It seems that since my abilities have changed SO MUCH, I need to find new purpose. I need to build a new life. It's super intimidating. My old plan was pretty cool. 

I can't make babies, can't scurry around as a nurse, can't handle play dates or loud groups of little people. Can't bake bread, afford more schooling, beautify my home, grocery shop, or pull in a paycheck just now. 

I can do personal daily worship, love my husband, teach my children, read, write, crochet, do a little family history work (it stresses me out), read to my children, talk to them for long periods of time, do family home evening, scripture study, family prayers, plan the menu, start simple dinners, carry out a very low-key calling, be available to my husband and children, make our home smell nice...

And miraculously, Heavenly Father allows me to feel well enough to go to church and partake of the Sacrament every Sunday. This is truly a miracle to me. 

But anyway, as far as comments like:

"Hope you feel better soon." 
"Maybe tomorrow will be better." 
"You should be good after this treatment, right?" 

I'm not offended, and I do have an answer. 

Probably no. 

I have a new body. It has problems. But it is still good for something.